Akangjungla
It is an recognized fact that “Down syndrome has always been a part of the human condition and it is one of the most common genetic birth disorders.” In some regions of the world, the month of October is dedicated as Down Syndrome Awareness Month to celebrate people who are born with an extra partial (or whole) copy of chromosome 21. October brings attention to the fact that people with Down syndrome have special abilities, and they are perfectly capable of doing everything, provided they are not deprived of equal opportunities by the family, friends and the society at large.
The Syndrome may have variable effects on the learning, physical abilities and health conditions and personalities but the individual with Down syndrome still have their own mind and dreams as everyone else. Early intervention programmes, inclusive education, counselling and adequate health care will benefit the individual. The development may be delayed, yet multiple reports establish that in most of the cases, they are able to support and take care of themselves.
Despite advances in many fronts, the understanding and acceptance of Down syndrome is still associated with stigma and shame. Naga society is making a very slow progress in this concern. The unease of dealing with the social stigma and intolerance is one of the major issues affecting children with special needs and their families. In order to raise awareness on Down syndrome and give every child their equal right, acceptance is crucial. The life-changing journey that begins with a special need child in the family might be made more rewarding by starting with self-acceptance as individuals and as parents regardless of the fear of the unknown.
In the face of the feelings of guilt and fear, parents championing the cause of creating awareness with acceptance and openness may help deal with the concerns and find ways to look toward the future where individual with the syndrome can integrate in the social order. Running away from the reality of life in the disguise of ignorance and rejection of the truth will only make the journey more difficult and challenging. Down syndrome does not mean poor quality of life or dealing with impossible limitations forever. Parents can be the most powerful advocates to influence the policy makers to push for inclusive education system in the state, to increase access to services for children with special need at all level, to create enabling environment in the community to bring a change in attitudes, building social and organizational support in order to help parents who are also in need, and also to trust and make possible for a child with the syndrome to be the best they could be, within their capabilities.
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